Would like to say a huge thank you, Elliot received his quilt yesterday, I chose superhero theme for him as he’s our very own little superhero, fed via his heart due to Intestinal failure, Brain Surgery just 6 weeks ago, rare chromosome disorders the list is endless, he’s back in theatre in just over a week for another new Line, his quilt is absolutely perfect, it’s beautiful and will be going with him.
Elliot was born at 34 weeks due to abnormalities whilst I was pregnant. He was born into intensive care and from day one he had feeding issues. He went home with an ng tube and shortly after was nj fed. He had 12 aspiration pneumonias and collapsed lungs and was diagnosed in the UK with malnutrition' Eventually things got a lot worse and he ended-up in GOSH for 7months. He was put on to TPN (fed via a line into his heart) and came home TPN dependant. He’s just last week had neurosurgery due to a condition he was born with and cysts in his spine. Elliot lives in hospital as he is often septic, he has no immune system which was confirmed by his bone marrow. Elliot is our very own little superhero, he’s a fighter.