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LoveQuiltsUK - Harriet C's quilt

Harriet C's quilt    (Quilt Closed)

Illness: Dravet Syndrome

Theme: Butterflies

Date opened: 9th Mar 2019
Date closed: 13th Mar 2019
Deadline: 26th Jul 2019

Photo of Harriet C

Child Interests

Harriet loves saying 'Hello'! She enjoys saying purple, yellow,red. Her favourite toy is a caterpillar which is red, yellow, blue and orange. She loves In the Night Garden,especially Iggle Piggle, Tweenies, Balamory, and the Teletubbies. She also loves Razzle Dazzle.


We first noticed something wasn’t right when Harriet was around 2 and half months old. Initial leg shaking, then before we knew it she began seizing on a very regular basis. We had constant visits to hospital usually in an ambulance with seizures lasting between 8 and 20 minutes long. There were regular hospital admissions with lots of different drugs tried. Nothing seemed to control the episodes and with each medication the seizures seemed to change but not stop. We tried the Ketogenic diet with some success, seizures lasted less than a minute, but after 2 years its effect reduced and the seizures became more frequent. Harriet’s general development by this stage was really regressing. Harriet suffered from a lot of infections which meant more and worse seizures. At 3 yrs old she had her tonsils removed and this helped a little. Harriet was tested for Dravet Syndrome around the age of four and was found to have a deletion in the SCNIA gene. Harriet was then given stiripentol. She continues to suffer with severe epilepsy, severe learning disabilities and also has a diagnosis of autism. Harriet functions around the age of an 18 month old child. She is unsteady on her feet and uses a wheel chair quite a lot now. She has clear onset of crouch-gait and requires support with everything that she does. She still has a lot of seizures and is about to try a new medication so we have some hope again.


1.Magazine chart Bloom & Butterfly: Allium flower with purple butterflyStitcher: Kate, Leics, UK
In Progress

2.Stitching the night away Brush stroke butterfly in favorite coloursStitcher: Nicola, St Albans, UK

3.New Stitches mag - two butterflies and leaves.Stitcher: Leanda Vickers, Oldham , England
In Progress

4.P19 of 365 Cross Stitch designs Butterfly magic by Leslie TeareStitcher: Roisin, Amersham, England
In Progress

5.Patchwork Butterfly - Michaela Learner from EtsyStitcher: Barbara, Midhurst , UK
In Progress

6.Cross Stitch Guild. Monochrome aztec style butterfly Stitcher: Jenny Elkington, Boston, UK
In Progress

7.Sweet Annet on etsy Mandala butterfly Stitcher: Karen, St Leonards on Sea , East Sussex
In Progress

8.World of Cross Stitching Butterfly Quilt Purple butterflyStitcher: Jade Kenny, Ballinasloe, Ireland
In Progress

9.Own design Butterfly silhuet in bright colorsStitcher: Merete, Allerød, Denmark
In Progress

10.Climbing Goat Design - The Paint Splatter Butterfly. Will do in Harriet's favourite colours. Stitcher: Kirsty Smith, Bowburn, UK
In Progress

11.Home design of several butterflies Stitcher: Pat Brown, Fareham, England
In Progress

12.Label Stitcher: Jeanne, Texas, USA
In Progress

Squares received

Cross stitch square for Harriet C's quilt
Stitched by: Nicola
Submitted: Mar 2019


Card for Harriet C
Stitched by: Pat Brown

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