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LoveQuiltsUK - Harriet C's quilt

Harriet C's quilt    (Quilt Completed)

Born:2005
Illness: Dravet Syndrome

Theme: Butterflies

Quilt delivered: 4th Sep 2019
Photo of Harriet C

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Heather

Individual squares

Cross stitch square for Harriet C's quilt
Stitched by: Barbara (+)
Submitted: Jul 2019

Cross stitch square for Harriet C's quilt
Stitched by: Jade Kenny (+)
Submitted: Jul 2019

Cross stitch square for Harriet C's quilt
Stitched by: Jeanne (+)
Submitted: May 2019

Cross stitch square for Harriet C's quilt
Stitched by: Jenny Elkington (+)
Submitted: Mar 2019

Cross stitch square for Harriet C's quilt
Stitched by: Karen (+)
Submitted: Jul 2019

Cross stitch square for Harriet C's quilt
Stitched by: Kate (+)
Submitted: Apr 2019

Cross stitch square for Harriet C's quilt
Stitched by: Kirsty Smith (+)
Submitted: Jun 2019

Cross stitch square for Harriet C's quilt
Stitched by: Leanda Vickers (+)
Submitted: Mar 2019

Cross stitch square for Harriet C's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Nov 2018

Cross stitch square for Harriet C's quilt
Stitched by: Merete (+)
Submitted: May 2019

Cross stitch square for Harriet C's quilt
Stitched by: Nicola (+)
Submitted: Mar 2019

Cross stitch square for Harriet C's quilt
Stitched by: Pat Brown (+)
Submitted: Apr 2019


Card

Card for Harriet C
Stitched by: Pat Brown

Biography

We first noticed something wasn’t right when Harriet was around 2 and half months old. Initial leg shaking, then before we knew it she began seizing on a very regular basis. We had constant visits to hospital usually in an ambulance with seizures lasting between 8 and 20 minutes long. There were regular hospital admissions with lots of different drugs tried. Nothing seemed to control the episodes and with each medication the seizures seemed to change but not stop. We tried the Ketogenic diet with some success, seizures lasted less than a minute, but after 2 years its effect reduced and the seizures became more frequent. Harriet’s general development by this stage was really regressing. Harriet suffered from a lot of infections which meant more and worse seizures. At 3 yrs old she had her tonsils removed and this helped a little. Harriet was tested for Dravet Syndrome around the age of four and was found to have a deletion in the SCNIA gene. Harriet was then given stiripentol. She continues to suffer with severe epilepsy, severe learning disabilities and also has a diagnosis of autism. Harriet functions around the age of an 18 month old child. She is unsteady on her feet and uses a wheel chair quite a lot now. She has clear onset of crouch-gait and requires support with everything that she does. She still has a lot of seizures and is about to try a new medication so we have some hope again.


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