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LoveQuiltsUK - Curtis D's quilt

Curtis D's quilt    (Quilt currently being assembled)

Born:016
Illness: Dravet syndrome

Theme: Theme not set

Quilt currently being assembled
Photo of Curtis D

Theme details

Theme not set - Backfilled quilt



Biography

Curtis had his first seizure at 4 and a half months old we were told this was probably a one off. Looking back at it now to have a seizure for 40 minutes isn't normal but being new parents we trusted the doctors and didn't know any different.

Fast forward to 8 months old and he had another seizure on our first family holiday in the pool at Centre Parcs, we knew then something wasn't right, we were losing our little boy as we knew him.

This seizure changed everything - when I look back now I can't remember those first few months with Curtis and the feeling of not having a care in the world.

Between Oct - Jan he had 9 prolonged seizures that all required hospital admissions and on one occasion we nearly lost him when he contracted pneumonia.

He is such a happy boy putting up with all he has to, a right little character now and beautiful - he is loved beyond measure and we'd be heartbroken if we lost him.

We give Curtis 5 medications three times a day and he still has daily little seizures, head drops, arm jerks, absences and then big ones because this is incurable.

He is such a loving fun boy he loves his toy dog, listening to nursery rhymes going for drives in the car and playing with his toy animals and watching Mr Tumble and he couldn't be more loved.



Patterns


1.Stitcher: Ginny Pledger, Earls Barton, UK
Received

2.Stitcher: Sid, Edinburgh, Scotland
Received

3.Stitcher: Paula Dewar, Glasgow, Scotland
Received

4.Stitcher: Gilly, Ellesmore Port, England
Received

5.Stitcher: Nicola, Elland, UK
Received

6.Stitcher: EE(Beth)Filmer, Adelaide, Australia
Received

7.Stitcher: Patricia, Northern Ireland, UK
Received

8.Stitcher: Katrina, Basingstoke, UK
Received

9.Stitcher: Margery, Needham Market, UK
Received

10.Stitcher: Margery, Needham Market, UK
Received

11.Stitcher: Elaine Dixon, Athens, Greece
Received

12.Label Stitcher: Leanda Vickers, Oldham , England
Received


Squares received

Cross stitch square for Curtis D's quilt
Stitched by: Ginny Pledger
Submitted: Feb 2015

Cross stitch square for Curtis D's quilt
Stitched by: Sid
Submitted: Mar 2015

Cross stitch square for Curtis D's quilt
Stitched by: Paula Dewar
Submitted: Mar 2016

Cross stitch square for Curtis D's quilt
Stitched by: Gilly
Submitted: Aug 2016

Cross stitch square for Curtis D's quilt
Stitched by: Nicola
Submitted: Dec 2016

Cross stitch square for Curtis D's quilt
Stitched by: EE(Beth)Filmer
Submitted: Nov 2018

Cross stitch square for Curtis D's quilt
Stitched by: Patricia
Submitted: Jan 2019

Cross stitch square for Curtis D's quilt
Stitched by: Katrina
Submitted: Jan 2019

Cross stitch square for Curtis D's quilt
Stitched by: Margery
Submitted: Feb 2019

Cross stitch square for Curtis D's quilt
Stitched by: Margery
Submitted: Feb 2019

Cross stitch square for Curtis D's quilt
Stitched by: Elaine Dixon
Submitted: Feb 2019

Cross stitch square for Curtis D's quilt
Stitched by: Leanda Vickers
Submitted: Mar 2019


Card

Card for Curtis D
Stitched by: Leanne

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