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LoveQuiltsUK - Lillie S's quilt

Lillie S's quilt    (Quilt currently being assembled)

Born:2012
Illness: Dravet syndrome

Theme: Disney

Quilt currently being assembled
Photo of Lillie S

Theme details

Disney - Backfilled quilt



Biography

Lillie was born by c-section healthy and full of joy. It wasn’t until she was 6 months old that she started having seizures. At the time we were told these were febrile convulsions. These would be every 2-3 weeks apart until May 2013 when she had a 40 minute seizure. The doctors started her off on medication and did a genetic test which took 12 weeks for the results to come back. The seizures then only came when she was unwell. In August we were told she had Dravet Syndrome and were given information on what to do. In December 2013 she suffered a prolonged seizure which caused a hypoxic brain injury and we spent 7 months in neuro-rehab as Lillie was now unable to walk, talk or even eat and had a gastrostomy button put in. We have been in and out of hospital since as she has many other issues such as spasms, reflux and low tone. We have had to move to a property that can accommodate Lillie’s needs and it has been especially hard on her brother who was only 5 when the brain injury happened.



Patterns


1.Stitcher: Nicola, Elland, UK
Received

2.Stitcher: Julie, Portgordon, Scotland
Received

3.Stitcher: Leanne Malcolmson, Romsey, UK
Received

4.Stitcher: Deborah, Leeds, UK
Received

5.Stitcher: Julie, Portgordon, Scotland
Received

6.Stitcher: Leanne Malcolmson, Romsey, UK
Received

7.Stitcher: Helen Irwin, Hull, UK
Received

8.Stitcher: Seren Senior, Derby, UK
Received

9.Stitcher: Ginny D, Canterbury, UK
Received

10.Stitcher: Elaine Martin, Birkenhead, Wirral, UK
Received

11.Stitcher: Sarah, Wagga Wagga, Australia
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Lillie S's quilt
Stitched by: Nicola
Submitted: Oct 2017

Cross stitch square for Lillie S's quilt
Stitched by: Julie
Submitted: May 2018

Cross stitch square for Lillie S's quilt
Stitched by: Leanne Malcolmson
Submitted: Sep 2018

Cross stitch square for Lillie S's quilt
Stitched by: Deborah
Submitted: Sep 2018

Cross stitch square for Lillie S's quilt
Stitched by: Julie
Submitted: Sep 2018

Cross stitch square for Lillie S's quilt
Stitched by: Leanne Malcolmson
Submitted: Oct 2018

Cross stitch square for Lillie S's quilt
Stitched by: Helen Irwin
Submitted: Nov 2018

Cross stitch square for Lillie S's quilt
Stitched by: Seren Senior
Submitted: Nov 2018

Cross stitch square for Lillie S's quilt
Stitched by: Ginny D
Submitted: Dec 2018

Cross stitch square for Lillie S's quilt
Stitched by: Elaine Martin
Submitted: Dec 2018

Cross stitch square for Lillie S's quilt
Stitched by: Sarah
Submitted: Jan 2019

Cross stitch square for Lillie S's quilt
Stitched by: Jan G
Submitted: Mar 2019


Card

Card for Lillie S
Stitched by: Kaz Bowen

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