Thankyou so much for Charlie's quilt, he absolutely loves it and he said "It's amazing". It arrived just in time for the cold weather, he was actually sat on the sofa asking for a blanket on Saturday morning when 2 minutes later the postman arrived with his quilt...we couldn't believe it!!
Charlie was born at 31 weeks and 5 days via emergency c-section, when I realised he wasn't moving in the womb. We had to be transferred from our local hospital in Halfax to York and the consultant said that if he had been left inside me another day or 2 he wouldn't be alive. Thankfully he was delivered safely and, although small, he was alive and that was all that mattered. He was in intensive care for a few days before being transferred to special care. We spent 12 days in York before we were allowed back to Halifax where he spent another 4 1/2 weeks. Whilst in Halifax he was routinely scanned on his head through the soft spot, this is when they found two bleeds on the brain that had turned to clots. The consultant took us to one side and just said we would have to wait and see if they would have any effect on Charlie. As the days and weeks passed by it was clear that Charlie wasn't quite right, even taking into account his prematurity he was very delayed. In June 2010 he was given the diagnosis of cerebral palsy after more tests and scans. It's good to have a diagnosis in a way but devastating at the same time.
Since Charlie's diagnosis he has had lots of physio, been prodded and poked and had a few rounds of botox in his legs which he absolutely hated. Charlie underwent surgery back in December 2016 where he had the ligaments in his groin area cut so that it was easier to dress and change him. His legs have since gone back to scissoring again so no doubt he will have to have this done again at some point in the near future.