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LoveQuiltsUK - Edie's quilt

Edie's quilt    (Quilt Completed)

Born:2017
Illness: Cystic Fibrosis. (And pancreatic insufficient)

Theme: Fairies etc

Quilt delivered: 11th Jun 2019
Photo of Edie

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Sarah

Individual squares

Cross stitch square for Edie's quilt
Stitched by: Emma Barnett (+)
Submitted: Dec 2018

Cross stitch square for Edie's quilt
Stitched by: Jan G (+)
Submitted: Apr 2019

Cross stitch square for Edie's quilt
Stitched by: Janet (+)
Submitted: Nov 2016

Cross stitch square for Edie's quilt
Stitched by: Janet T (+)
Submitted: Dec 2018

Cross stitch square for Edie's quilt
Stitched by: Joanne (+)
Submitted: Nov 2014

Cross stitch square for Edie's quilt
Stitched by: Judith Chamberlain (+)
Submitted: Mar 2019

Cross stitch square for Edie's quilt
Stitched by: Julie (+)
Submitted: Feb 2019

Cross stitch square for Edie's quilt
Stitched by: Julie (+)
Submitted: Feb 2019

Cross stitch square for Edie's quilt
Stitched by: Michele (+)
Submitted: Mar 2019

Cross stitch square for Edie's quilt
Stitched by: Sarah (+)
Submitted: Jan 2019

Cross stitch square for Edie's quilt
Stitched by: Yvonne (+)
Submitted: Sep 2018

Cross stitch square for Edie's quilt
Stitched by: Yvonne (+)
Submitted: Jan 2019


Card

Card for Edie
Stitched by: Beth C

Biography

When I was pregnant with Edie I was told she was small and had an enlarged stomach. I had lots of fluid around her and towards the end of my pregnancy she stopped growing. She was born early via C-section and after a quick hold she was taken for x-rays and checks. When she returned I was told she was fine.

She suffered terribly with reflux and was constantly sleeping, refusing to wake for feeds and dropping weight quickly. We ended up back in hospital as I knew something wasn't right. She was tube fed but she still wasn't putting on enough weight. It was when her heel prick test came back she was diagnosed with cystic fibrosis.

She's two years old and has only had 7 full weeks where she hasn't been on antibiotics due to persistent infections. She has daily physio and medication to help clear her lungs of a thick mucus and help her absorb the fat and nutrients from food. For months she developed a fear of hospitals & nurses as they had to do a lot of the tubes and IV treatments, this petrified her and she stopped eating and talking as a result. We also struggled to give her her daily medications and she had play therapy to help with all of this.

We know from her condition that these infections cause deterioration and we have to keep her as healthy as possible until a cure is found.


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