Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

LoveQuiltsUK - Jake C's quilt

Jake C's quilt   (Quilt Coming Soon)

Illness: noonan syndrome

Theme: Space

Quilt will open soon, keep checking back!
Photo of Jake C

Child Interests

Space. Dinosaurs. Colours.


When Jake was born he already had a diagnosis of Noonan Syndrome. Jake had major difficulties with feeding from birth and lost 2lb in weight within a week. Jake was born with pulmonary valve stenosis which needs monitoring. At 9 months old Jake was diagnosed with hydrocephalus, this is currently still being monitored due to Jake having a blood clotting disorder which will cause extra complications during surgery. Jack is 5 but developmentally delayed so he is more like a 2 year old. He's not long started walking and still very unsteady.

Back to home