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LoveQuiltsUK - Aryan S's quilt

Aryan S's quilt    (Quilt Closed)

Born:2011
Illness: DRAVET SYNDROME- severe form of epilepsy

Theme: Stars

Date opened: 15th Jun 2019
Date closed: 3rd Jul 2019
Deadline: 26th Oct 2019

Photo of Aryan S

Theme details

Stars - Stars should form part of the design (OK to have eg an animal with a star or a space scene for example)



Biography

Aryan is a very happy boy. He was born with hypoxic ischaemic encephalopathy and was in NICU for 4 weeks, and a total of 8 weeks in the neonatal unit. We got him back after a very big struggle, he was recovering well but when he was 6 months old had his first seizure for 5 mins. Since then he has been having 1000s of seizures every day. He was diagnosed with epilepsy but his seizures were getting worse, lasting for 2- 3 hours and slowly he lost all his abilities to talk, walk or move. Anything can be a trigger for his seizures like being sad or happy, excitement, temperature, cold. A small change in temperature caused him to have a status epilepticus. Finally a new neurologist for Aryan diagnosed Dravet Syndrome, a very rare and severe form of epilepsy. He has more than 100 seizures in a day and different kinds varying from myoclonic jerks, absence seizures, tonic clonic and generalised seizures. Now, 5 years on, his seizures are a bit better controlled but the Winter is always hard on him. He is always exhausted because of the medications he takes. We are managing to take him to school and trying to keep him happy & occupied with things he likes.

He is always smiling and giggling and likes going out, but due to his allergies and conditions we can hardly take him anywhere. Now he needs support in every aspect of his life, he can still have seizures any minute.



Patterns


1.DMC Half moon and starsStitcher: Eileen, Newcastle, UK
In Progress

2.Climbing goat design rainbow star patternStitcher: Clare Blandy, Meppershall, England
In Progress
https://www.etsy.com/uk/listing/467947336/rainbow-...

3.Dimensions kit Moon and stars and teddy. Dimensions kitStitcher: Sharon Hill, Billinge, UK
In Progress

4.A panda and stars around the panda.Stitcher: Louise B, Surrey, UK
In Progress

5.Ragtime Stitches Night Music - a star made of musical notes.Stitcher: Leanda Vickers, Oldham , England
Received

6.Free DMC pattern. Cluster of stars with star gazer words.Stitcher: Julie, Portgordon, Scotland
Received

7.Geometric star by KnitSewMake on Etsy Multi coloured geometric star designStitcher: Julie, Anglesey, Wales
In Progress

8.Climbing goat designs rainbow star Magic Wand with StarsStitcher: Nicola, St Albans, UK
Received

9.Climbing goat design, space star.Stitcher: Heather Joyce, Sandiacre, UK
In Progress

10.Rainbow star central with smaller outer ones by Susan Saltzgiver Rainbow starStitcher: Shirley, Worthing, Sussex, England
In Progress

11.Stained glass sunStitcher: Ilana, Oxford, UK
Received
http://passionbrode77.canalblog.com/archives/2018/...

12.Label Stitcher: Alysia, Kings Langley, UK
In Progress


Squares received

Cross stitch square for Aryan S's quilt
Stitched by: Leanda Vickers
Submitted: Jun 2019

Cross stitch square for Aryan S's quilt
Stitched by: Julie
Submitted: Aug 2019

Cross stitch square for Aryan S's quilt
Stitched by: Nicola
Submitted: Jul 2019

Cross stitch square for Aryan S's quilt
Stitched by: Ilana
Submitted: Aug 2019


Card

Card for Aryan S
Stitched by: Jill Smith

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