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LoveQuiltsUK - Felicity G's quilt

Felicity G's quilt    (Quilt Closed)

Born:2010
Illness: Lissencephaly

Theme: Minnie Mouse and Friends

Date opened: 24th Aug 2019
Date closed: 28th Aug 2019
Deadline: 30th Dec 2019

Photo of Felicity G

Theme details

Minnie Mouse and Friends - Minnie on her own, or Minnie with her friends



Child Interests

She loves to splash in the water - the freedom helps her feel slightly less confused than when strapped into her equipment.
Loves animals especially her little fluffy dog so visits to zoos & farms always bring smiles. She is known to lick animals and investigate different textures of their fur, skin etc if she gets close enough.
Light sensory mad especially bubble walls/tubes.
Anything to do with Minnie Mouse gets the biggest reaction so often chills with her dvds on.
Favourite colour either red or dark pink like Minnie Mouse's dresses.


Biography

At first everyone said I had the perfect first baby, she was so happy & content. She ate well, slept well & was such a little cutie.
Then, at 5 1/2months old, all that changed from a simple eye roll not much different to a typical baby falling asleep from just having a bottle eye roll. In April 2011 she was rushed to hospital having what was to be the first of many seizures.
After just over 2 days of trying to stop the seizures with no luck she was sedated & ventilated in PICU. CT scan, bloods and lumbar puncture came back clear. Finally an MRI gave us the answer, it wasn't just really bad epilepsy as we had hoped. Her brain was completely malformed & smooth, barely compatible with life so doctors doubted she would live to the age of two.
Over the years we've had hospital admissions as new types of seizures emerge, been weaned on and off new meds and increased meds time & time again. we've even been told more likely to be planning her funeral than birthday party one year as nothing can get full control of the seizures.
Seizures have no pattern, warning or predictability. Sometimes it's like she's not even aware they've happened so carries on others cause crying out as if in pain. Some cause abilities to be lost so she can't even have a drink or smile, some cause inability to sleep, others knock her out.
She is unable to walk, talk, do more than press a button or shake a rattle with her hands, is doubly incontinent, uses a hoist lift, takes daily medications and has a soft food diet & thickened drinks. She has to rely on someone for everything in life.
Some days the seizures are barely there others can be well into the double figures with five different types of seizure activity to watch for. All we can do now is wait and see. She's exceeded doctors expectations by far, but we're never far from being reminded that she's classed as living on borrowed time as each seizure could be her end.



Patterns


1.Minnie and Mickey in a diving suit from LQ Files Stitcher: Rachael Skinner , Southampton , Hampshire
In Progress

2.Minnie Mouse in Flower from LQ FilesStitcher: Barbara, Midhurst , UK
In Progress

3.Disney a punto Croce issue 93 Minnie Mouse and a wee bear with some love hearts Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

4.Love Quilts pattern Minnie FairyStitcher: Marilyn Foyle, Biggleswade, UK
In Progress

5.Minnie Mouse in pink spotty dress by Disney Anchor Stitcher: Val Gilbert, Coningsby , UK
In Progress

6.Minnie Mouse on the beach from LQ filesStitcher: Julie Robbins, Bromsgrove , UK
In Progress

7.Paragon Disney booklet Mickey handing Minnie a bunch of flowers Stitcher: Heather, Littleborough, England
In Progress

8.Just Minnie taken from the photo shoot design from the Mickey ultimate cross stitch book Minnie in pink dress with yellow handbagStitcher: Jennie, Dundee, UK
In Progress

9.Minnie and Mickey jogging - Paragon Sports and LeisureStitcher: Leanda Vickers, Oldham , England
Received

10.Mickey unlimited ultimate cross stitch collection. By leisure arts Jitterbug Minnie- Minnie dancing with pink skirtStitcher: C McDonald, Altrincham, UK
In Progress

11.LQ files princess minnieStitcher: Rachael Skinner , Southampton , Hampshire
In Progress

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress


Squares received

Cross stitch square for Felicity G's quilt
Stitched by: Leanda Vickers
Submitted: Sep 2019



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