Tom B's quilt    (Quilt Completed)

Thank you

I wanted to let you know how utterly delighted he is! We’ve just got back from his Make A Wish trip to see the Muppets at Disneyworld Orlando and Harry Potter at Universal Studios so the timing of the arrival of this masterpiece was brilliant! Here are 2 videos and some pictures - I read out everyone’s names and where they were from to Tom. You are all amazing and we will treasure his quilt for life. Tom actually doesn’t use a traditional duvet because he doesn’t regulate his temperature well so your quilt will be slept under every night

Finished photos

Individual squares

Card

Stitched by: Nicky Forshaw

Biography

Tom was born (along with his twin sister Iris) 2 months early after mum developed pre-eclampsia. Tom and Iris spent 5 weeks in an intensive care baby unit and another 2 weeks in special care before being well enough to come home. He was initially deemed fit and well on discharge but soon showed signs of things not being right. After a horribly worrying first year Tom was eventually diagnosed with a hypoxic brain injury called periventricular leukomalacia, which in turn caused cerebral palsy affecting his whole body.

Tom is an amazing boy - fully able to speak and having us in stitches most of the time! He is unable to stand, walk, sit, crawl or feed himself unaided and developed epilepsy in his first few years which is well controlled with medication. He is an absolute pleasure - funny, inquisitive, bossy, clever - just trapped in a body that doesn’t do what he wants it to. He has a twin sister who is his best friend and who loves him hugely. He also has an 11 year old sister Molly. He goes to a specialist school for kids with cerebral palsy and is getting on well and learning slowly but surely both academically and physically.