Jayden A's quilt    (Quilt Completed)

Thank you

Wow is all I can say.

Thank you all so much. My Jay burst into tears when he realised it had all his favourite characters on it.

We had some bad news on Wednesday about Jays heart and found out his surgery his being brought forward.

It’s honestly beautiful.
Thank you just isn’t enough.

You’ve all made a little boys day so much brighter and better

Finished photos

Individual squares

Card

Stitched by: Jill Smith

Biography

At my 20 week scan they found a problem with his heart. I was sent for an emergency scan the next day and was then sent to Bristol to be shown around the hospital and told I would be induced with Jayden at 37 weeks. After 5 days of labour he was born and whisked away to NICU where he remained for 4 days before being transferred to the children’s hospital.

Jayden had 2 operations within being 8 days old, his first failed and the second was a success. We were then discharged home when Jayden was 3 weeks old.

He has had regular heart check-ups since then, with a total of 13 surgeries, 4 open hearts and 9 keyhole. Each operation has had side effects on both me and Jayden. Jayden is autistic, has sensory processing disorder, separation anxiety & anxiety.

During one of his ‘episodes’ he turns blue & purple around his nose, eyes, lips and finger tips. The colour drains from his face and his oxygen levels will drop severely. Because of this he has a sats machine in his bag which is on him 24/7. We have medical plans in place with his school for emergency purposes. He also has an IEP and is in the process of doing an EHCP.