LoveQuiltsUK - Ellis S's quilt

Ellis S's quilt (Quilt Completed)

Born:	2007
Illness:	Noonan's Syndrome and Hypertrophic Cardiomyopathy.
Theme: Hearts Quilt delivered: 13th Aug 2020

Thank you

Just to let you know the most beautiful quilt I have even seen has arrived. Ellis adores it even in this heat. I have attached a photo.

The card also made her day. Thank you so so much xx

Finished photos

Quilted by: Mary

Individual squares

Stitched by: Anne (+) Submitted: Feb 2020	Stitched by: Carol Ayling (+) Submitted: Jul 2020
Stitched by: Donna Sharpe (+) Submitted: Jun 2020	Stitched by: Hannah (+) Submitted: Feb 2020
Stitched by: Jan G (+) Submitted: Mar 2020	Stitched by: Jennie (+) Submitted: Jul 2020
Stitched by: Jenny Elkington (+) Submitted: Feb 2020	Stitched by: Jodie Balaam (+) Submitted: Feb 2020
Stitched by: Julie Robbins (+) Submitted: Aug 2019	Stitched by: Nicola (+) Submitted: Feb 2020
Stitched by: Paula Dewar (+) Submitted: Mar 2020	Stitched by: Val Gilbert (+) Submitted: Feb 2020

Card

Stitched by: Sandra

Biography

I always knew there was something not quite right with Ellis, it always niggled at me. At 20 weeks we were told she needed glasses, at 6 months she was diagnosed as dairy intolerant. She met milestones late, not that I cared I was just grateful we had a daughter after a very traumatic birth. We had lots of referrals to different doctors but were not really told anything - perhaps I was mad I thought. Around 5 they did a series of genetic tests but nothing was conclusive. She is a vegetarian from 2 with food phobia. In December 2016 her dad was diagnosed with HCM - we were strongly advised to screen Ellis as this is genetic. We went to the Brompton for a series of tests with her and we were told on the same day she too had HCM. Blood was taken for genetics which was rushed through. In Oct 2017 we were were told that they both had Noonan's Syndrome.