Kai John W's quilt    (Quilt Completed)

Thank you

I just wanted to say a massive thank you to everyone who spent time to make our lovely KJ's quilt and card. It is absolutely perfect and he loves it so much! What a beautiful gift, he is so very lucky! He will be sure to use it everyday and for all his big hospital trips. Thank you all so much, we all love it and will never forget how special it is x

Finished photos

Individual squares

Card

Stitched by: Jodie Balaam

Biography

When our little Kai John was born, he instantly stopped breathing and turned blue. After 14 attempts of resuscitation, the amazing nurses were able to bring Kai round. In the first hour of his life, Kai went to the children's hospital in Glasgow - a couple of hours away from us and at four hours old he was given a tracheostomy as his last hope. We were later told about Kai's rare condition Pierre Robin which meant he was born without a chin and a cleft palate.

Kai had to undergo two major surgeries at 3 months old and 7 months old to give his chin the opportunity to grow - jaw distraction. He had pins (distractors) inserted into his jaw that myself and his dad had to turn twenty times a day with a device that almost looks like a screwdriver for his chin to grow. He also went into hospital for his cleft palate repair at 10 months old. Kai has had a really rough start in life spending his first 3 and a half months in intensive care and then being in and out for 5 surgeries since then. As his parents we are so proud of him and how he doesn't ever stop trying to do things we were told he would never do - such as drinking from a bottle and not a tube, making noises even though he has a trachy. He is a truly wonderful little man with a big smile!