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LoveQuiltsUK - Kabir G's quilt

Kabir G's quilt   (Quilt Coming Soon)

Born:2008
Illness: Cerebral Palsy

Theme: London Underground and other trains


Quilt will open soon, keep checking back!
Photo of Kabir G

Theme details

London Underground and other trains - London Underground is a favourite - trains, roundels etc. Other trains to supplement. Modern trains preferred



Child Interests

He has an obsession with trains, particularly the London Underground. He loves the colours red and blue, so is particularly keen on the signs used around the underground. We have used the underground roundel to decorate his wheelchair and have a few signs up in his bedroom. He is particularly keen on Shepherds Bush station as we used to live close by when he was a toddler.


Biography

Kabir suffered an hypoxic brain injury during his birth. He was resuscitated and placed on a ventilator in the Neonatal Intensive Care Unit. He had a MRI scan after one week which showed a significant brain injury and he was diagnosed with cerebral palsy. He was discharged from hospital after 25 days, but had difficulty swallowing and required his milk to be thickened.

Kabir has athetoid cerebral palsy, which means his muscle tone is generally low and he suffers with continuous unwanted movements.

He has received physiotherapy, occupational therapy, speech and language therapy from the age of 3 months but is unable to walk or talk.

His epilepsy manifested itself after he turned 6, and he started to have regular generalised seizures during the night. These have become more frequent over the last year and he has had to take additional medication to help to control them.

Despite all of these challenges, Kabir has remained determined to make whatever progress he can. He is essentially a happy boy despite the frustration of not being able to achieve the things he wants to do.






















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