LoveQuiltsUK - Kearyn A's quilt

Kearyn A's quilt (Quilt Completed)

Born:	2012
Illness:	NF type 1, Noonan's Syndrome, congenital glaucoma
Theme: Thomas/Mickey Mouse Quilt delivered: 2nd Apr 2021

Thank you

I love my new quilt. Thank you. Love Kearyn

Finished photos

Quilted by: Sandra (Beds)

Individual squares

Stitched by: Barbara (+) Submitted: Dec 2020	Stitched by: Carol Ayling (+) Submitted: Jan 2021
Stitched by: Deborah (+) Submitted: Oct 2020	Stitched by: Faye Williams (+) Submitted: Nov 2020
Stitched by: Gemma.H (+) Submitted: Oct 2020	Stitched by: Helen Irwin (+) Submitted: Oct 2020
Stitched by: Jan G (+) Submitted: Oct 2020	Stitched by: Jeanne (+) Submitted: Dec 2020
Stitched by: Jen King (+) Submitted: Dec 2020	Stitched by: Linda Cropper (+) Submitted: Nov 2020
Stitched by: Marilyn Foyle (+) Submitted: Oct 2020	Stitched by: Moira Anne Jeffcoat (+) Submitted: Nov 2020

Card

Stitched by: Sandra

Biography

Kearyn was born at 37 weeks in 2012. His illness started straight away with feeding issues, reflux, dysmorphic facial features and failing newborn sight tests. Our local eye hospital, where we were sent by our health visitor at 2 months, diagnosed congenital glaucoma in both eyes and he's had multiple operations to help control this plus daily eye drops.
From birth Kearyn had noticeable dysmorphic facial features and started developing brown coffee coloured skin patches. After blood tests and visiting genetics Drs, by aged 1 he was diagnosed with NF1 with Noonan's Syndrome. This has resulted in multiple tests and scans to discover Kearyn has an inoperable tumour on his optic pathway. He is also registered blind and will fully lose his sight.