Thea-Rose's quilt    (Quilt Completed)

Thank you

Thea-Rose’s quilt has arrived and she absolutely loves it. It is amazing and we cannot thank everyone enough! She is currently laid snuggled up with it with a massive smile on her face. Thank you sooo sooo much to everyone xxx

Finished photos

Individual squares

Card

Stitched by: Leanne

Biography

Thea-Rose has been a little ray of sunshine from the minute we found out I was pregnant. On Thea's 20 week scan we could see the problems with her kidneys and were told about all the complications that could occur. We managed to get to 38 weeks with no problems when I was induced and our beautiful little girl arrived. She was quickly whisked away for scans and tests and we were told things looked positive. We were delighted and over the moon!

Every month Thea has tests and scans on her kidneys she's been put to sleep so many times. As time went on her kidneys got worse and worse and they needed to investigate further. She needed a small surgery to insert a camera to see what was happening at 6 months old. Thea had full reconstruction surgery of her bladder, urethra and kidneys there and then. Thea was in hospital for a long time but recovered well and they managed to save her kidneys with 25% function. Thea still has monthly scans on her kidneys which are slowly beginning to enlarge.

At around 15 months old she started to walk and for months she continued to walk like a new walker. She was sent for an MRI which showed she had brain damage and lumbar lordosis. This affects her physical development and how she walks. Thea is a very happy little girl who really struggles with walking and keeping her balance, she has an unsteady gait and hypotonia in her legs which makes it all so much harder again. Thea suffers a lot of pain with her legs and spends a lot of time laid up which isn't fair for a 3 year old little girl who wants just dance and play.

Just after Thea's 2nd birthday we noticed her not filling her nappies much and the consultants began to keep an eye on this. In February 2020 Thea stopped weeing throughout the day and only on a night when asleep and relaxed. This was a massive cause for concern and tests showed Thea's bladder had stopped working. She had to be catheterised every hour which was really stressful and caused her to become very withdrawn. She had emergency surgery and was fitted with the cystostomy button which is drained every hour and is on a continuous drain throughout the night.

Thea has recently been diagnosed with epilepsy and is on regular medication and rescue medication for this. Thea has most of her tonic clonic seizures when she is unwell and unfortunately with her kidney and bladder problems she suffers from a lot of infections which make her really ill and increase her seizures. It's a continuous fight to keep her safe and well.
Thea really struggles to deal with people on a daily basis and is behind in all her developmental areas. Specialists say she is traumatised from all the medical interventions and hospital stays which makes her suffer from anxiety too. Thea now attends a school nursery and has a 1-1 who is amazing and Thea really really loves.
Thea is a very smiley bubbly little girl when she gets to know you but it can take her a long time to come round. When she is out of her home setting she is very quiet and withdrawn and will curl into a ball behind mummy .She cannot deal with busy or loud situations but loves to be at home playing with her babies and having cuddles. She has a massive personality that is enough to light up any room and deals with all her problems in her own little way. She becomes really attached to people and things so a blanket like this would be amazing especially for hospital stays and at times when she feels she needs the extra comfort.