Alfie P's quilt

Finished photos

Individual squares

Card

Stitched by: Kaz Bowen

Biography

Alfie was born naturally at 37 weeks. We were discharged from hospital within a few hours. At home we noticed him having some odd movements but just put it down to him being so tiny (6lb). On day 2 Alfie was admitted to hospital for jaundice and poor feeding. These odd movements carried on and I was told to 'keep an eye'.

Nothing really worsened until Alfie was 3 months old. I was putting his big brother to bed one evening and Alfie was laying on the floor watching the lights on the Christmas tree. When I came back to Alfie I thought he had fallen asleep so picked him up to put in his crib. Alife wasn't breathing. It took paramedics 35 minutes to get to us, I managed to resuscitate Alfie before they arrived. From there it was a downward spiral.
Alfie failed to meet milestones and we were given so many possible diagnosis, cerebral palsy, cortical dysplasia, episodic ataxia. Now we have been told after extensive tests over the years there's only a very slim chance we will ever get answers or explanations. We take each day as it comes. Alfie is an incredible little boy who never fails to smile.