BiographyJack was born 6 weeks premature.
And from there his problems began. He struggled to thrive. He had feeding issues, severe acid reflux. He aspirated and it was touch and go.
He wasn’t diagnosed until he was a year old with Noonans syndrome. Then a heart defect. At three it was found that he was also deaf in both ears and his speech hadn’t developed.
He was diagnosed with gallbladder stones.
In later years we found out that Jack had sustained some brain damage due to the aspiration which affected his speech and memory.
He has had operations for heart, hernias, testicles, biopsies , tonsils and gallbladder surgery.
He has also been diagnosed with hyper mobility and POTS. He has large varicose veins in both legs. He has low white blood cells and is susceptible to infections. He suffers so much with any cold weather. Although he has a clinical diagnosis of Noonans, genetics are unable to find this in his genes .. he has even been on the 100,000 genome project and still they can’t give us a diagnosis.
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