LoveQuiltsUK - Tyler Lee's quilt

Tyler Lee's quilt (Quilt Completed)

Born:	2009
Illness:	West syndrome, Reduced white matter, Cerebella hypoplasia,sensori-neural deafness,micocephaly,complex seizures, global developmental delays, GOS, Chro
Theme: Male Disney Characters Quilt delivered: 23rd Oct 2012

Thank you

Quilt received with many thanks, absolutely amazing he loves it can't thank all involved enough.

Finished photos

Quilted by: Yvonne P

Individual squares

Stitched by: Ginny Pledger (+) Submitted: Jun 2012	Stitched by: Heidi Pemberton (+) Submitted: Sep 2011
Stitched by: Jill Smith (+) Submitted: Jul 2012	Stitched by: Kate Allsop (+) Submitted: Jul 2012
Stitched by: Kita (+) Submitted: Jun 2012	Stitched by: Lis Nielsen (+) Submitted: May 2012
Stitched by: Mariann (+) Submitted: Jul 2012	Stitched by: Paula (+) Submitted: Sep 2012
Stitched by: Poppie Taylor (+) Submitted: May 2012	Stitched by: Sandra (+) Submitted: Jun 2012
Stitched by: Seren Senior (+) Submitted: Jun 2012	Stitched by: Verity (+) Submitted: Jun 2012

Fabric

Biography

Tyler Lee was born full term but born with hearing loss and never took to bottle. At 6 weeks old Tyler began to have seizures but it was put down to reflux spasms. By the age of 5/6 months Tyler was rushed to Alder Hey as more where he underwent a lot of tests: lumbar puncture, EEG, MRI, blood tests etc and was diagnosed with West Syndrome. He then had a NG tube put in and medications started.

Within 12 months things became worse and we were back and forth to hospital. Things became worse: we were told that a MRI scan showed reduced white matter and that this white matter was turning into They didn't know how long Tyler would live - diagnosis is still unclear on why he has reduced white matter. There are doctors in Holland looking at his MRI scans to see if they can understand why.

Tyler has to have a lot of medication to keep him stable and so far it's working. In March 2012 we were told that Tyler has now lost sight in right eye due to retinal detatchment and can not be fixed with surgery. Despite all his problems he's a wonderful and content little boy but not knowing he if will be here in the morning breaks our hearts I'd be lost without him, he's my world. x