Olivia-Mae's quilt    (Quilt Completed)

Thank you

Today something very special came for our beautiful special princess Dolly ???????????? Just look at this beautiful hand made quilt made by Love Quilts UK ?? each square on this blanket has been individually cross stitched by a different volunteer stitcher from all around the country some as far out as Australia. These quilts are made for children with life-threatening or life-long illnesses. To say I’m blown away is an understatement it’s absolutely beautiful and it’s made my week To everyone else it’s just a quilt but to me it’s far more it’s a keepsake something to treasure forever. Thank you so much to every single person far and wide that was involved in making this beautiful quilt and a very special thank you to our amazing Nessa Elise and her beautiful mummy it most definitely was made with love we will always be eternally grateful to you all, we absolutely love it

Finished photos

Individual squares

Card

Stitched by: Unknown

Biography

Olivia-Mae (DOLLY), that’s what we all call her, was diagnosed with foxg1 syndrome at the age of 11 months old. As a tiny baby she cried 22 hours a day inconsolably, nothing would calm her down,no one knew what was wrong.

Foxg1 syndrome affects the front part of the brain and muscle tone. We were told Olivia would never walk, talk, eat, she would have epilepsy at some point in her life and many more complications too. On learning Olivia's diagnoses we were told the eldest living child in the medical journal with what Olivia had was only 7. Our world fell apart.

Olivia-mae is now 12 and she’s the happiest little girl we’ve ever met and has an infectious smile for every occasion. Even at her weakest she always has a smile. She suffers massively with her epilepsy and also has a very significant curve in her spine and a hip that’s ready to dislocate. She is in constant pain. She produces ridiculous amounts of acid in her little tummy that pour out of her gastrostomy and burn her tiny belly. We’ve just recently had to start feeding her through an NJ tube to give her tummy a rest. She’s awaiting major spinal surgery and hip surgery too. Both come with some really big risks but despite all of this she is the bravest little girl we know with the most infectious smile ever, she’s perfect in every single way. She’s our beautiful little Dolly xx