Afiyah M's quilt    (Quilt Completed)

Thank you

Thank you for sending such a beautiful quilt for our little Afiyah. It has been a ray of hope at a difficult time

Finished photos

Individual squares

Card

Stitched by: Leanne

Biography

At 11 weeks of the pregnancy we were told our child had crossed legs and this could mean many different things. After extensive scans we were told that her condition was incompatible with life and that she would not make it through the second or third trimester and there was 0% chance of survival at birth as she had an extremely recessed chin and no foetal swallowing.

After a traumatic birth (three epidurals and 20 NICU staff present), our little Afiyah made an appearance. I did not expect her to be breathing or alive and she looked up with her little eyes, saying "hello mummy, I'm here". They quickly whisked her away to the NICU, where we spent 249 days before coming home for 6 weeks.

Afiyah stops breathing and requires resus at any point of the day or night due to brain stem dysfunction/lack of swallow. We travelled to different NICUs around our area and to specialised units to see if there was anything that could help our little girl. We were told there was nothing and she was put under palliative care.

We were home for 6 weeks in September 2020 and then back in hospital to the paediatric ward for the last 9 months and hoping for her to come home again to live with her family.