Frankie's quilt    (Quilt Completed)

Thank you

Hi, we received Frankie's quilt, it is beautiful and he loves it, thank you so much!

Finished photos

Individual squares

Card

Stitched by: Sarah Jackson Cartledge

Biography

Frankie was taken into foster care at birth, his birth parents knew they wouldn't be able to care for him for numerous reasons and asked us if we would take him on. In February 2018 we became his legal guardians.

Frankie had a diagnosis of down syndrome at birth, at 4 days old he was rushed to Evelina London and had emergency surgery to save his life and had an ileostomy due to a diagnosis of Hirschsprungs Disease (a rare condition where he has no ganglion cells in part of his bowel) so couldn't pass any stools.
He has since had a surgery to remove the affected section of bowel followed by a third surgery to reverse the stoma. He has also had 2 further surgeries for spur division of scar tissue and botox to aid in him being able to pass stools. He requires regular rectal washouts and enemas and has a concoction of medicines to keep things moving. Despite the surgery, Hirschsprungs disease is a life long condition and carries the risk of Hirschsprungs associated enterocolitis (which he has fought twice already) and sepsis. There are no guarantees he will become continent eventually or even if he will have to go back to a stoma but we try to give him every opportunity possible to live the best life.