Maisie M's quilt (Quilt Completed) |
| Born: | 2007 |
| Illness: | Pyruvate kinase deficiency, blood transfusion dependent, no spleen, iron overload.
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Theme: Enchanted World
Quilt delivered: 2nd Apr 2023 |
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Thank youThank you so so much for Maisie's quilt. It's is absolutely stunning. Maisie's face lit up as soon as she saw it. She is now wanting to get into bed to get snuggled in it.
We honestly can't thankyou all enough for your amazing kindness. The quilt is just beautiful. Both myself and Maisie are delighted with it.
Once again... thankyou. You are all angels in disguise.
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Finished photos
Quilted by:
Alison and Janine
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Individual squares
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Stitched by:
Anne
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Submitted: Jan 2023
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Stitched by:
Gemma Boreham
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Submitted: Nov 2022
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Stitched by:
Jan G
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Submitted: Jan 2023
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Stitched by:
Jan S
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Submitted: Dec 2018
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Stitched by:
Jan S
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Submitted: Jan 2023
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Stitched by:
Jodi Maple
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Submitted: Jan 2023
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Stitched by:
Julie
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Submitted: Jan 2023
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Stitched by:
Kaz Bowen
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Submitted: Dec 2022
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Stitched by:
Miss Debbie Elkington
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Submitted: Nov 2022
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Stitched by:
Nicky
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Submitted: Jan 2023
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Stitched by:
Pru
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Submitted: Nov 2022
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Stitched by:
Sue
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Submitted: Dec 2022
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Card
Stitched by: Jan Garton |
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BiographyMaisie was ventilated at birth. She received 3 blood transfusions in her first day of life, her jaundice levels were 700 (usually 45). Maisie continued to receive blood transfusions every 3 weeks due to her haemoglobin dropping drastically.
Maisie has many operations including a Hickman line and Portercath inserted into her chest and 2 bone marrow aspirations. Maisie has had a total of 150 blood transfusions to date. She has also had her spleen and gall bladder removed.
Maisie is the 40th person in the UK to be diagnosed with pyruvate kinase deficiency. The illness is so rare that it took doctors 14 months to find a diagnosis.
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