Bailey R's quilt   (Quilt Completed) |
Born: | 2014 |
Illness: | Duchenne muscular dystrophy
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Theme: Vehicles
Quilt delivered: 2nd Jul 2023 |
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Thank youBailey is so happy with the quilt, he took it to the RVI with him this week. He wraps himself in it like a sausage roll, right now it's his favourite thing, he refuses to sleep without it. Thank you so much x
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Finished photos
Quilted by:
Ann
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Individual squares
Stitched by:
DRPG Group
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Submitted: Dec 2020
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Stitched by:
EE(Beth)Filmer
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Submitted: Oct 2020
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Stitched by:
Jan G
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Submitted: Apr 2023
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Stitched by:
Jodie Balaam
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Submitted: May 2022
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Stitched by:
Lorna Simpson
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Submitted: Mar 2022
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Stitched by:
Margaret
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Submitted: May 2022
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Stitched by:
Marjory
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Submitted: Feb 2022
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Stitched by:
Marjory
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Submitted: Feb 2022
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Stitched by:
Sarah
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Submitted: Aug 2020
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Stitched by:
Sarah B
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Submitted: May 2022
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Stitched by:
Sid
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Submitted: Apr 2022
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Stitched by:
Sylvia
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Submitted: Jul 2022
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Card
Stitched by: Pat Brown |
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BiographyBailey was born fine then we started noticing that he was having tightness in his legs and complaining of pain and was still not walking at the age of 1 and a half. I kept taking him to the GP and they kept putting it down to growing pains. Finally a Dr referred us to paeds where they did a blood test and we got sent to Newcastle where they told me his diagnosis 2 weeks before Xmas. Just what I wanted to hear! So we started going to more appointments and he went on a drug trial vamorolone. He now has a wheelchair and is struggling more but he loves motorbikes, quad bikes and cars. He's such a loving boy.
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