Julia D's quilt   (Quilt Completed) |
Born: | 2022 |
Illness: | Chromosome 15 deletion including Prader - Willi, Schaff -Yang and Epileptic encephalopathy
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Theme: Fairies/rainbows/butterflies
Quilt delivered: 28th Nov 2024 |
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Thank youWhile Thea was in hospital on one side of the country, Julia was airlifted to hospital on the other side. And hence, now they are both home they have been able to open their quilts. Thank you so much from the bottom of our hearts for these beautiful quilts. They will be treasured. Julia says thank you so much
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Finished photos

Quilted by:
Sandra (Beds)
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Individual squares

Stitched by:
Alison
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Submitted: Aug 2024
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Stitched by:
Anne
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Submitted: Jul 2024
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Stitched by:
Heather
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Submitted: Jun 2024
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Stitched by:
Jan G
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Submitted: Jun 2024
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Stitched by:
Jodie Balaam
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Submitted: Jun 2024
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Stitched by:
Julie
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Submitted: Jun 2024
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Stitched by:
Marilyn Foyle
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Submitted: Jun 2024
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Stitched by:
Pauline
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Submitted: Jun 2024
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Stitched by:
Sally
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Submitted: Jul 2024
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Stitched by:
Sandra
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Submitted: May 2024
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Stitched by:
Sharon
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Submitted: Sep 2024
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Stitched by:
Val Gilbert
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Submitted: Jul 2024
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Card

Stitched by: Nicola Bailey |
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BiographyJulia was born extremely floppy and it was an intense first year of her life as we came to understand the complexities of her large genetic deletion that makes her quite unique and unfortunately affects every aspect of her life. She has had many hospital admissions and really scared us in October 2023 when she became very poorly and had a cardiac arrest.
She is the sweetest, most calm little girl who is very challenged by her body that doesn't cooperate very well. She has to work very hard to breathe, very hard to move, and very hard to engage with the world. She is the baby of our family and is very much adored.
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