BiographyReagen was born what we thought was a normal healthy child. He was such a content child, always happy and barely cried. We noticed he wasn’t meeting his milestones so took him to the doctor, his condition was never mentioned we just thought he was a bit behind. He had bloods and that’s when we were told the devastating news that our child had a life limiting disease. Since then he has been through loads, he lost the ability to walk in 2021 at the age of 10. Nothing ever seems to bother him, he’s still such a happy boy always making people laugh and is so loved by everyone he meets
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