Chloe's quilt    (Quilt Completed)

Thank you

Just want to say a huge thank you for Chloe's stunning quilt, I had seen photos of the quilts but I was not prepared for just how beautiful they actually are up close and I'm honestly in love with it. Chloe can't say in words how much she loves it but I think her face says all you need to know and we will cherish it forever. Thank you xxx

Finished photos

Individual squares

Card

Stitched by: Heather

Biography

Chloe was born prematurely at 28 weeks and 5 days. She had sepsis and meningitis in her first few days of life and then they found a cyst blocking her airway which required surgery. She was transferred to a specialist hospital and had life saving surgery which involved a laser into her airway. Two weeks later she had the procedure repeated as she was deteriorating rapidly. At around 8 weeks old she was big enough to have major surgery to remove the cyst. This involved open surgery with full heart and lung bypass, she was still pre-term at this point at 36 weeks and weighed just 5lbs.

When we reached her due date we were told she had developed severe damage to her brain so nothing more could be done except keep her comfortable. End of life plans were put in place but she fought on and finally came home at 6 months old. Chloe is 4 now (5 in September), still under palliative care but constantly proving them wrong. She's completely non-mobile, non-verbal, nil by mouth and extremely developmentally delayed. She has a visual impairment and is fed via gastrostomy tube and requires 24 hour care. She is on a long list of medications for epilepsy, gut issues, respiratory illnesses and for pain and uses nebulisers and suction due to the respiratory problems.

Chloe is the bravest and most resilient child and rarely complains, she just smiles through it all.