Henry M's quilt    (Quilt Open)

Theme details

Rainbows (Cute or Realistic style) - Rainbow scenes and rainbow coloured things are OK, but nothing that looks abstract as he's very young.

Also likes the following - Giraffe, Fish, Lion, Elephant and vehicles Cars, Aeroplanes and trains if there are any patterns of these with rainbows in the background for example.

Child Interests

Henry’s favourite colours are blue and yellow. His favourite things are animals (safari/zoo/ocean) and he loves rainbows. He likes transport, especially cars and aeroplanes. He loves watching CBeebies.

Biography

At 28 weeks in my pregnancy I was diagnosed with Polyhydramnios and was given fortnightly scans to check on baby but no further concerns were raised. Henry was born at 36w+5d. It wasn’t until he was 9 hours old that things started to drastically change. He went to NICU for monitoring but never came back up. His oxygen was low and he needed intubating.

Fast forward a few days and Henry seemed a perfectly healthy baby. Ee were told his complications could be due to fast labour or due to all the other excess fluid I had. On day 5 discharge checks they detected a heart murmur but weren’t initially worried and wanted him to have an ECG and ECHO to review his anatomy. And there it was the devastating words rushing around our heads “survival” “complex pulmonary atresia and mapcas” “open heart surgery” “transfer to specialists”.

Henry was transferred to Leicester Royal Infirmary and started on Prostin. All his saturations were monitored but by 21 days old he’d successfully come off Prostin and was holding reasonable saturations. We were discharged home to enjoy our baby and let him grow!

And that’s exactly what we did - in between countless hospital admissions with respiratory problems / chest infections / static weight and new diagnoses along the way. He was able to keep growing until 14 months old when he had his first open heart surgery. Following his surgery came a tough fight to stay with us. His first theatre trip turned into 4 and his almighty battle with ECMO but he survived and we are truly blessed he had the strength!

Since Henry’s surgery in April 2024, he hasn’t been back home (9+ months) due to ongoing respiratory issues and post surgery complications (vocal cord palsy and right arm weakness). We are very near the end of this very lengthy traumatic admission but we are just so grateful to have our special boy with us each and every day. His fight is our fight.

Patterns (0 stitchers needed)

Squares received