LoveQuiltsUK - Lilly May T's quilt

Lilly May T's quilt (Quilt Completed)

Born:	2009
Illness:	Dravits Syndrome
Theme: Angels/Fairies Quilt delivered: 17th Dec 2010

Thank you

Thank you all for your effort !! Lilly-May Loves it soooo much xx

Finished photos

Quilted by: Katherine

Individual squares

Stitched by: Gaynor (+) Submitted: May 2010	Stitched by: Gilly (+) Submitted: Aug 2010
Stitched by: Jackie (+) Submitted: Jun 2010	Stitched by: Jayne (+) Submitted: Jul 2010
Stitched by: Karen (+) Submitted: Apr 2010	Stitched by: Karen (+) Submitted: Sep 2010
Stitched by: Karen (+) Submitted: May 2010	Stitched by: Karen (+) Submitted: May 2010
Stitched by: Kim (+) Submitted: Sep 2010	Stitched by: Mrs Clare Dewhirst (+) Submitted: Jul 2010
Stitched by: Patricia (+) Submitted: Aug 2010	Stitched by: Sandy (+) Submitted: Jul 2010
Stitched by: Sarah (+) Submitted: May 2010	Stitched by: Sylvia (+) Submitted: Sep 2010
Stitched by: Victoria (+) Submitted: Sep 2010

Fabric

Donated by: Victoria, Sleaford

Biography

Lilly-May was born a happy, healthy little girl . Shortly after her last immunisations at 4 months she had her first seizure, the doctors at the hospital said it was due to a temperature. It became a regular occurrence and each time she would end up in hospital, her seizures started lasting 2-3 hours, too long for such a little girl! In October 2009 she had some genetic tests done and on the 8th of April 2010 Lilly was finally diagnosed with Dravits Syndrome, a rare genetic disorder where she has extreme fits, static epilepticus. Lilly now is not allowed to fit for longer than half an hour and has to be intubated and transfered to Intensive Care in Manchester.