My husband picked it up from the post office, he has just got in!! Oh
my goodness it is wonderful. It made me cry!! Thank you so much. Nina
is at respite this weekend so will take photos when she get back on
monday, but it is even more beautiful than we had hoped for!
We were sorry to hear that Nina passed away in November 2021 :(
Nina was born at 32 weeks after a normal pregnancy. She was ventilated for 13 days but made a good recovery. When we brought her home we were told she was tiny but all the signs were that she would develop normally.
When she was 3 months old I was feeding her when she started fitting. We took her to hospital but were told it wasnt a proper fit. Over the next 3 months we took her to hospital over 15 times, she was fitting most days but the fits were short and only affected half of her body. Eventually the hospital sent her for an EEG and we were told she had a rare form of epilepsy (hypsarrythmia) which, while undiagnosed caused brain damage.
Since then her disability has become more and more apparent. She is unable to say more than a few words, and she is physically very limited. But she is the light of our lives, has two adoring brothers and is such a happy and delightful daughter. She has many friends who love her and never ceases to smile at us, even when things are really difficult for her. She is 16 now and in many ways a typical teen, but she is so special to us!