Casey H's quilt    (Quilt Completed)

Thank you

It's arrived!!! Totally in love with Casey's quilt thank you all stitchers and quilters from the bottom of our hearts. We are truly thankful, Casey loves it!!xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Kerry Mabbott

Biography

Casey was born at 39 weeks, he had a pathological ctg and was without sufficient oxygen for 2-4 hours. Casey was strong and unfortunately, medical staff didn't pick up on this. He was allowed home 3 days later and I was told that he had an erbs palsy and he would need an outpatients appointment in 4-6 weeks. That appointment never came. My little boy spent everyday screaming. I took him to the gp countless times and we tried different milks and reflux medication. The gp said it was the worst case of reflux she had seen. She told me to take him to A&E if he was no better over Christmas. On 27th December 2011, I took casey to A&E. He was admitted for observation. It was found that caseys head "wasn't particularly large" and an MRI was arranged for 18th January 2012. We received the results on 23rd January 2012. Casey had HIE and ulegyria. The neurologist told us that "the left side of caseys brain had dissolved from all the damage and the right side looked smashed and moth eaten in appearance"!! We were shocked and devastated. Casey also has west syndrome and severe epilepsy. He is registered blind and has spastic quadriplegic cerebal palsy, reflux and dystonia. Casey has refractory epilepsy and is on 5 anticonvulsants daily, unfortunately, he is allergic to benzodiazepines and steroids and suffers anaphylaxis from these. A lot of medication is ruled out due to that and they are struggling to find alternatives. Caseys epilepsy has been his major battle, since march this year we have had 2 weeks out of hospital and casey has been in status most days, he actually became toxic from the amount of medication they gave him to try and stop his seizures. We are currently waiting to start the ketogenic diet but they are not hopeful that it will work. However, when casey is well, he is happy and smiles/giggles and he is the light of our lives! He is so strong and keeps proving everybody wrong! We love our little bear sooo much and are so blessed to have him in our lives💗