LoveQuiltsUK - Tayen Tots's quilt

Tayen Tots's quilt (Quilt Completed)

Born:	2011
Illness:	NF1. Optic gliomas ( tumours) on both nerves that extend through her brain to the back. Registered blind. Epileptic.
Theme: Butterflies Quilt delivered: 30th Jan 2015

Thank you

It's stunning! I can't thank you all enough! Truly beautiful and Little Miss Tots loves it :) Thank you xxx

Finished photos

Quilted by: Kita

Individual squares

Stitched by: Cameron Ayling (+) Submitted: Jan 2015	Stitched by: Debbie Fulton (+) Submitted: Nov 2014
Stitched by: Debbie May (+) Submitted: Jan 2015	Stitched by: Donna Edmends (+) Submitted: Jan 2015
Stitched by: EE(Beth)Filmer (+) Submitted: Oct 2014	Stitched by: Emma Barnett (+) Submitted: Oct 2014
Stitched by: Jennifer Urquhart (+) Submitted: Oct 2014	Stitched by: Kerry Mabbott (+) Submitted: Oct 2014
Stitched by: Lesleyann Curran (+) Submitted: Sep 2014	Stitched by: Louisa (+) Submitted: Sep 2014
Stitched by: Moira Anne Jeffcoat (+) Submitted: Oct 2014	Stitched by: Rita Turner (+) Submitted: Sep 2014

Fabric

Card

Stitched by: Alysia Martindale

Biography

Tayen was born via normal delivery with few problems at birth. She had a heart murmur which self corrected and rotational talipes. Tayen's (Tots for short) development regressed and was significantly delayed by 12 months. Her eye sight was poor and she was constantly ill, despite paeds appoit wants and follow up's nobody would listen to our concerns. At 22 months old Tots suffered a large seizure at home which last over an hour. They finically did an MRI and found that Tayen had the worst tumours they'd ever seen due to the genetic condition NF1 ( Neurofibromatosis ) we started chemotherapy less than two weeks later to try to save the vision she had. She sadly went blind just 6 weeks into treatment and we have to continue chemo to save other functions. Tayen has since suffered some hearing loss due to the chemotherapy and due to the limited drugs we can use against these tumours we are possibly looking at letting nature take it's course. Tots is fiesty, loveable and never stops smiling!