at Matthews 6 week baby check the gp found a heart problem,because his elder brother had a hole in his heart it was assumed Matthew had the same,he saw a pediatrician at 4 months who arranged a scan he had a scan when he was 7 months old,he was diagnosed as having a pulmonary valve stenosis. an urgent cardiac catheter was arranged. this was in may ,but unfortunately it was unsuccessful.and another one was arranged for September, bloods where taken for genetic testing.
a week before his scan was due. we where contacted by phone to say Matthew needed heart surgery,we where devastated.he had an appt ? for bloods and a scan but the weekend before his appt on the Mon we received a letter stating Matt had a genetic disorder. 2 days later we got a letter stating he had noonan syndrome..on Christmas eve when Matt, was 15 months old he had open heart surgery.he condition cannot be cured but they monitor him yearly now .he will ? need more surgery but they want to try and wait till he,s a teenager.he wears glasses s and has been under the speech therapy and audiology.he is a real character and is at main stream school .