Elahna arrived on her due date and was very swollen after seeing various health visitors about her swelling not going down we finally was seen by Elahnas big sisters paediatritian and she instantly diagnosed her with Primary Lymphoedema. I was hoping that after all the fighting I had done with getting Elahnas big sister Gracie-Louise diagnosed that this was gonna be plain sailing but I was very wrong.
It took 6 months for an appointment with the top professor in London and then to be seen by a therapist and get garments was a fight as they said she was too young.
We finally got the garments that she needed but I am still fighting to get other garments for other parts of her body.
Elahna has Primary Lymphoedema in both feet, both legs, both hands, both arms, genitals, bottom, neck and left side of her face.
Primary Lymphoedema is a hereditary chronic illness and Elahna will have this for the rest of her life. Her lymphatic system doesnt work properly and so it cant get rid of all the bad toxins in her body.
There is a special massage called Manuel Lymphatic Drainage that I can do on Elahna and she will eventually have to learn this herself when she is older