Alexander C's quilt    (Quilt Completed)

Thank you

Here is Alexander with his amazing dinosaur quilt. Since receiving this wonderful gift he has refused to sleep with any other bedding at night. Alex is an inpatient at hospital 3-4 times a year I know this quilt will be a real comfort to him when he is having his treatments. Thank you to all the wonderful people who have brought a lot of happiness to a little boy who is extremely brave and never complains. Our family would like to wish you all a very Merry Christmas and hope you receive all the good things that you deserve. xx

Finished photos

Individual squares

Fabric

Card

Stitched by: Ginny Pledger

Biography

Alexander was diagnosed with Cystic Fibrosis when he was 3yrs old. I had been attending the doctors almost every week for around 18 months prior to diagnosis because of his constant coughing and what appeared to be an upset tum. Eventually after asking for a second opinion Alex was referred to chest specialist who told me his chest was fine and perhaps I was an over anxious mother? Weeks went by and I watched my little boy deteriorate, he was coughing so much he was sick. Again I asked for a referral to a specialist and within weeks we had an appointment with yet another consultant, this time I was listened to as I tearfully explained all of his symptoms all over again. The following week Alex was referred to Alder Hey children's hospital for a sweat test which basically extracts excess salt from the skin which can determine Cystic Fibrosis. After what seemed like an eternity waiting for a result we got the news we least wanted to hear, our precious boy has Cystic Fibrosis, an illness for which there is no cure. We were told that because of his late diagnosis it was likely that his lungs were already damaged and that we could expect a life expectancy of around 31yrs at best. Alex has had several admissions to hospital for regular IV antibiotics since diagnosis, he also suffers with digestion problems, liver damage and ABPA which is an added complication. Despite taking around 35 tablets per day, 2 daily nebulised medications and twice daily physio sessions, Alex remains a very upbeat and positive little boy. He loves school, attends Cubs, enjoys football, is obsessed with dinosaurs, and has a 'can do' attitude. As a family we do not focus on the future but encourage Alex to enjoy life on a day to day basis. We appreciate the wonderful child Alex is, and are thankful of the time we have already spent with him.