Frankie L's quilt    (Quilt Completed)

Thank you

Look what arrived in the post this morning!!!!

Thank you so much from the bottom of my heart for this beautiful quilt for Frankie!

First thing he said was 'wow mam, me love it'

He will not leave it alone haha!

Thank you to every single person that's played part in making this beautiful gift for my boy..

The work you do for our poorly babies is incredible!

Finished photos

Individual squares

Card

Biography

Frankie's condition was diagnosed during pregnancy. He basically only has half a heart. He has had 3 major open heart surgeries already but sadly there's no more surgery that can help his heart as he is now into heart failure.

We have been on the active transplant list for a new heart since January this year and his condition is now beginning to get worse. We are just waiting for that life changing phonecall to say they have found a match but whether or not that call will ever come is something nobody can guarantee us. We are now just trying to make the most of every single day!

Frankies bad days are becoming more frequent. He now won't eat anything at all and is back onto milk fed by his NG tube to his stomach. He is very breathless and vomits if he tries to play with other children his age as he simply doesn't have the energy to keep up with them. He is sleeping alot more than he used to and needs to sit down to rest very often now.

He is very blue at times due to certain parts of his body not getting as much blood as it needs because his heart is slowing down and is also freezing cold to touch.

He's gradually getting worse and we need this heart before he becomes too ill to recover from the major surgery of the transplant itself.
Xxx