Chloe was born at 36 weeks and hadn't passed her meconium or fed properly by the time she was 2 days so she was transferred to ICU where a twisted bowel was suspected. At 3 days old, Chloe was transferred over 100 miles away to the nearest available hospital where she had X-rays to determine the cause(s) of her symptoms. It became apparent that the blockage was caused by meconium and that Chloe had a condition called Meconium Ileus. At a week old, Chloe suffered a collapsed lung and needed intense physiotherapy and oxygen to re-inflate the lung.
After it was confirmed that Chloe would not need surgery, she was transferred back to our local hospital where we received the results from her newborn screening which indicated the possibility of having Cystic Fibrosis. Further blood work was done and Chloe was officially diagnosed with CF at 3 weeks old. After spending 4 weeks in hospital, Chloe came home on her due date and we fell into a routine of daily physio and medication.
Chloe is now 3 (nearly 4) and is starting to understand more about CF. She takes around 15-20 capsules a day (these are enzymes that she has to have every time she eats), as well as having physio at least twice a day and sometimes inhales, nebulisers and antibiotics.