Ben was born in May 2013, weighing a good weight of 8lb 7oz.
Everything was perfect until the heel prick test. Diagnosis was a shock but things began to fall into place, he wasn't gaining weight well and struggled to feed.
After treatment and medication from the Royal Brompton Hospital he was like a different child. Thriving and full of energy. Few hiccups along the way. We have had many stays in hospital for two weeks treatment but he's coped with it all and continues to every day. Now just over 3 years, he amazes me every day, takes his medication himself, nebulisers are a breeze. He's so full of life and extremely active. Kicking his condition into touch.
Currently looking forward to being a big brother to a sister due in January 2017.