Benjamin B's quilt    (Quilt Completed)

Thank you

Ben's quilt has arrived!! We are so amazed by how much time, effort and love has gone into making this quite. We are so thankful to each and every one of you that had had input into his quite and want to say a massive thank you for all your hard work...it truly is beautiful and will be treasured forever xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Jill Smith

Biography

Ben was induced at 39 weeks due to low movements and being smaller than expected. When he was born we knew something wasn't right and the following day he was diagnosed with Craniosynostosis.

Ben suffered with feeding issues and had an NG placed in order to be able to be fed. Ben's muscle tone was bad and he was diagnosed with Scolosis. We knew there was something underlying and eventually he was diagnosed with Bohring-Opitz Syndrome - being a rare syndrome we still don't know much about it and take 1 day at a time.

He currently attends special needs school which he loves. He has been through several operations for feeding tubes, Jejunal tubes and is awaiting a major operation on his head to correct the Metopic Craniosynostosis.

He wears glasses and a lycra suit to try and maintain his scoliosis as well as splints on his feet/ankles. He is unable to stand or sit unaided and needs help with everyday tasks as is unable to do anything for himself. He is also non-verbal but he is a happy little boy and is forever smiling even with everything he has to go through.