Our little girl was born 7lb 12oz after a natural birth, we was sent home two hours later. Being first time parents with very little experience of babies, we were learning along with our new little Bella. By the time Bella was two and half weeks old, we were worried.
Bella barely slept, cried alo,t fed every hour, always had a upset tummy and was losing weight. Bella was uphappy and deep down so we're we. What were we doing wrong? Is this how new borns are? When returning home from a walk there was a note on the door mat to phone the health visiter right away. She said she needed to see us today - I asked why, she said would like to see us in person. Please just tell me I said. she replied Bella has cystic fibrosis.
After going to the hospital it was a whirl wind of information, bags of medicine, being shown physiotherapy to kept her lungs clear, meeting all the new people that would help in Bellas' care.
Over these last eight years, Bella has been in and out of hospital for ivs, has an acute needle phobia and has to be sedated for any needle work. She has physiotherapy twice a day, everyday, and takes a whole list of meds and nebulised antibiotics everyday.
She is a strong willed fighter who pushes herself to keep going and not let cf define who she is.