Elliot E's quilt    (Quilt Completed)

Thank you

Thanks again to all involved xx I love every square and the card is beautifully made too x

We were sad to hear that Elliot passed away in November 2019

Finished photos

Individual squares

Card

Stitched by: Shirley Clarke

Biography

When Elliot was born in July 2005 there was no indication that anything was wrong. But in December 2005, he started having seizures and was admitted to the HDU unit of University Hospital of Wales Cardiff, where they carried out several scans and he was then diagnosed with Lissencephaly which translates as smooth brain.

As a result of this diagnosis he suffers from epilepsy, global developmental delay, he is doubly incontinent and tube fed. He is wheelchair bound as he has no control of his movements, I would describe his abilities as those of a newborn however he is the size of a 12 year old.

He has had numerous hospital stays including a number in the HDU ward primarily due to chest infections, but has also had 5 major operations including the insertion of a VNS in order to help control his seizures.

He attends the local special needs school where he has made small, but significant for him, progressions, including using the eye-gaze system (a computer system controlled by eye movement) although he has limited vision. He also enjoys music and the light and dark sensory rooms.

Elliot has an older and younger brother who enjoys spending time with him.