Emily B's quilt    (Quilt Completed)

Thank you

Can't thank you enough to all those who helped make Emily's beautiful quilt, she's tucked up with it at the hospital, fast asleep and making really good progress we were blown away how beautiful it is and thank you again for all your hard work. Lots of love The Bushaways ♥ xxxxx

Finished photos

Individual squares

Biography

Emily was our 2nd child sister to her big brother Harry. We started having concerns when Emily started school showing signs of struggling with routine change and becoming emotionally confused. After ongoing suggestions of a possible diagnoses, Emily started so show signs of walking difficulties and 'blank' episodes, falling over for no apparent reason. This led us to push to get her referred to Great Ormond Street Children's Hospital.

Tests and six months later we were given the devastating news that Emily had NPC.

Emily can no longer walk, talk, and is fed via gastro. She has faced some unbelievable challenges but continues to amaze us with her courage and strength and love in her eyes. We also found out three years ago that Emily's younger sister Sarah also has NPC.

As a family we do our best to keep our girls and remarkable son happy and love them with all our heart.