Our precious Ã‰lodie Rose had a complicated, prolonged, traumatic delivery at term and was born in very poor condition with no cardiac or respiratory effort for 20 minutes. She was resuscitated, intubated, ventilated, cooled and transferred to our regional tertiary neonatal intensive care unit (NICU) that night. She suffered multi-organ failure, started fitting and had an MRI scan which showed brain damage due to oxygen deprivation during delivery - Hypoxic Ischaemic Encephalopathy.
The prognosis was bleak and we were told to expect the worst - that she might die and if she survived she would likely be globally severely affected.
However, our girl is a warrior and after a month in NICU we were able to make it home together. Despite many hurdles including speech and swallowing issues and quadriplegic cerebral palsy, (which impacts all four limbs and means she cannot independently stand or walk), resulting in gruelling daily therapies and weekly hospital appointments, Elodie approaches life with a smile on her face. We are awed by her resilience. She has worked incredibly hard and made remarkable progress over the last 2.5 years and she is the happy, chatty light of our lives.