Our handsome and the absolute nicest natured son Oliver was born after a completely normal pregnancy and birth. At age 6 months he started 'jerking'. After visiting the GP each week for a month with videos he was eventually diagnosed with infantile spasms, a devasting type of epilepsy that affects babies. He was treated in hospital and we thought he might be in the very fortunate 10% that made a full recovery. However, the seizures returned and at age 2 years he was diagnosed with epilepsy.
Since then there has hardly been a day when Oliver hasn't had any seizures. He has tried everything - medication (lots!), special diet, surgery investigation and has a VNS inserted but nothing has worked. It is sad times when you are on first name terms with your pharmacist, ambulance crews, A&E and hospital ward staff as we see them so often.
Oliver was also diagnosed with autism at age 3 years. Now, due to constant seizure activity, he has severe learning difficulties and doesn't speak as much. However, Oliver is happy and comes alive with anything connected to his interests - Thomas the Tank Engine, ten pin bowling and aeroplanes (he loves Spitfires particularly). He then will sometimes spontaneously make conversation which is lovely to hear and much missed by us all.