Jaeden became poorly at 8 weeks old after his first set of immunisations. The day after he got a cold and a bad cough and was breathing very heavily. I took him to A&E and he was treated with an antibiotic but Jaeden didn't responded to it. The hospital did test after test, weeks later the results showed he had a poor immune system. He was transferred to a specialist hospital in Newcastle where further tests were carried out.
Months later he was discharged home with lots of medication, I was trained on a medicine which Jaeden still has now to give him extra protection from bugs and viruses.
In 2011 we went to Scotland for my sister's wedding. Jaeden had what I thought was a bug. His weight dramatically fell off, he looked drawn and unwell. The following week we had a follow up appointment in Newcastle. Jaeden's consultant took one look at him and had him admitted. He had to have a feeding tube inserted and they started him on a high calorie milk as Jaeden just stopped eating. He never tolerated the milk well and he was often sick and had diarrhoea.
During that stay Jaeden's consultant was concerned as to how the sickness and diarrhoea had a dramatic effect on Jaeden. With close discussions and thoughts we decided to go ahead with a bone marrow transplant.
The transplant took place in August 2012, I could not kiss him or hug him as he had chemotherapy for 10 days. This journey was very difficult. There were ups and downs and a few trips to ICU but 10 months later we were discharged home with strict rules. He was wrapped in a bubble. Jaeden had his diagnosis of Nemo deficiency when his teeth started to come through as they grow differently. He couldn't go to play centres or be around children. Jaeden has been in and out of hospital even after the transplant. He was also diagnosed with colitis.
This is very brief and short regarding Jaeden's life as he has been through it. Jaeden to this present day is doing well, he is in full time school and enjoying it. He is still on medication and regular follow up appointments. Even though Jaeden is 10 he is the size of a 5 year old, so now they are looking at his growth because as his illness may have affected his bones. He eats well now as he is on medication to control his colitis.
A quilt will mean so much to him as he always likes be snug.