Jaxon G's quilt    (Quilt Completed)

Thank you

Thank you so much for Jaxons quilt.
He was absolutely delighted when he opened the parcel and couldn’t believe his eyes.
Please pass on our huge thanks to all the talented people that have contributed towards making this truly magnificent quilt, pillowcase and card. The amount of hard work and detail that has gone into making this is amazing and it will be treasured.
Thanks again for making special memories for our little boy.
Many thanks
Heidi

Finished photos

Individual squares

Card

Stitched by: Ruth Horn

Biography

Jaxon was born by caesarean section in 2011. At his 6 week routine check his GP heard a heart murmur and referred him to see a paediatric consultant at Calderdale Royal. At this appointment, only 3 weeks later, we were informed his liver was enlarged and he had heart failure and was admitted. After his echocardiogram he was transferred to Leeds General Infirmary where further tests were carried out. He was put on a beta blocker and diuretics.
Fortunately a genetics doctor got involved and suggested testing for a couple of rare conditions that he thought may be responsible for the unusual heart abnormalities found in Jaxon. Thirteen weeks later Jaxon was indeed diagnosed with Leopard Syndrome. Life would never be the same. Thankfully, after a lengthy wait, it was confirmed that none of his sisters or brother have the disease.
He is still closely monitored and we don’t know what the future holds. Jaxon wears hearing aids and at present he is awaiting an operation on his ear. He is due to have an MRI scan next week too. He is such a happy little boy and every day we are thankful that we can make more memories to treasure.