Leo S's quilt    (Quilt Completed)

Thank you

Leo John received his quilt today and he absolutely loves it. Thank you so much each and every person that put so much time and love into it xx

Finished photos

Individual squares

Card

Stitched by: Anthea Allen

Biography

Leo was born at 36 weeks after I had a blood clot that went to my lungs. He was really ill when he was born and eventually he was diagnosed lactose and dairy intolerant at 2 months after being hospitalised for 3 weeks. He got better. At 2 he started falling and screaming in pain and nobody knew why. We took him back and forth to 4 different doctors all told us it was growing pains. Take calpol he will be fine. By the time he was 4 he could barely walk,he was loosing so much weight and wasnt growing in height. He was in so much pain he was hospitalised 4 times and still nobody knew what was wrong. Last year he got worse and he was rushed to Aberdeen children's hospital where they told us to prepare for the worst. We started planning his funeral in july. 21st august after an mri scan and 5 biopsies they told us he has a rare genetic immune disorder and crmo. He is 1 of 40 in the world. Trial treatment was started straight away,half went threw a Hickman line the other half was done by ng tube. Thankfully he is a fighter and by october he was up and about playing,smiling and showing us all he was better. We got to take him home a week before Christmas. He is doing well atm tumours are shrinking, he gets injections 3xs a week for life at hospital for his immune deficiency and his meds have been reduced enough to remove the Hickman line. Hes not yet in remission but he continues to fight and even managed to go to school with some help. Unfortunately now the tumours have made him incontinent but he smiles threw. We are hopefully he will get a good break before he gets more pain etc but treatment is working well. We cant thank the hospital enough for saving our boy and letting him be here with us x