Thank you just doesnt seem enough! The work that has gone into Albies quilt is phenomenal. Albie is beyond happy and loves every single stitch that has gone into making this pure work of art. It will be treasured just like his big sisters still is 5 years on. It will attend every hospital admission to keep him cosy and feeling that little bit more safe. Thank you so so much to everyone that takes their time to put smiles on these childrens faces, it is very much appreciated, now more than ever
Albie was born after a very traumatic birth resulting in mum needing an emergency cesarean and blood transfusion. During the pregnancy we were aware there could be a risk of Albie having cystic fibrosis as he also has an older sister who has it too. We requested that cord bloods were taken straight after birth to test for cf but, because of the birth being right before new year and the manner of the birth this didn't happen, which resulted in a 2 week agonising wait for his result. During this time Albie was very poorly, being rushed back into hospital with severe jaundice due to his condition, he needed to be tube fed and under UV lighting to help him, he lost a big amount of weight and was very unsettled. The day before his sisters birthday we received a the phone call from the hospital to confirm he had cystic fibrosis.
From there on he's been in and out of hospital having his 1st op at 10 months old for bronchoscopy and intravenous antibiotics. He's now had to have this twice more. Due to his condition he also has liver disease and gallstones which cause him a lot of discomfort, he struggles with eating and is underweight. He has started to get clubbed fingers which is a sign of the condition progressing now. He's such a fun loving little boy and even with all his daily treatments of nebuliser, physiotherapy and around 20 tables a day to help him digest food and keep his liver and vitamin levels up he's full of fun and very mischievous - getting into all sorts of trouble with his big sister.