Bella B's quilt    (Quilt Completed)

Thank you

HUGE thank you for Bellas quilt

It’s just stunning.

Bella has a new disability bed on order and it’s just the thing to make it look more pretty ????

Thank you again you very talented group of lovely people xxxx

Finished photos

Individual squares

Card

Stitched by: Sandra (Beds)

Biography

When Bella was born her squashed little face melted our hearts and we felt love like never before.
Bella didn’t go home that day, in fact we didn’t get to come home for 8 weeks due to seizures, reflux pain and feeding issues. Bella was having seizures every 20 minutes at worst and each one broke our hearts.
SCN2A related disorders are a group of epilepsy and neurodevelopmental disorders, each caused by changes (mutations) in a gene called SCN2A.
These disorders range from mild to severe
Bella's variety is categorised as infantile epileptic encephalopathy (IEE) - characterised by seizures beginning in infancy (before 12 months of age) followed by developmental delay.
Diagnosis aside our daughter is happy, beautiful, loves cuddles, is gentle and lights up rooms with her giggles.