Caden's quilt   (Quilt Completed)
| Hydrocephalus, epilepsy, global developmental delay, syndrome undiagnosed, registered blind and deaf, respiratory issues (on oxygen).
Quilt delivered: 9th May 2021
Quilt has arrived, we love it. It's been his best comfort these last few days, won't let it go and loves hiding under it
Stitched by: Sandra
Caden was born at 39 weeks. Before his birth I was told he had fluid on the brain (large ventricles). After birth came all his other wee conditions such as epilepsy, scoliosis, heart murmur and he was registered deaf as he failed 4 hearing tests. He had his 1st surgery for his shunt in September 2011. He has spent most of his life in and out of hospital for lots of reasons and lots of surgeries. I've lost count of the amount of anaesthetics he's had, especially these last 2 years.
Caden is unable to walk, crawl or talk so relies on his wheelchair and help and support with everything on a daily basis. Three years ago Caden took an eye haemorrhage in his left eye and due to that the eye started to decay and cause pain. Two years ago he had the eye removed to stop pain and was fitted with false eyes.
Most of his admissions to hospital have been for seizures or respiratory issues. In September 2019 Caden had his first admission to ICU and spent 3 weeks on a ventilator before being weaned off. Again, in December 2019, after 2 shunt surgeries in the space of a week he ended up back in ICU. On Christmas Eve things took a bad turn but after a few days he started to improve.
Since then his swallow has got so bad he's had to have a peg tube inserted. Gastro feeds didn't work well for Caden so he's spent 12 weeks in hospital from June 2020 having various surgeries to try and help his stomach as he couldn't stop vomiting. Everything failed so he had a jejunal tube inserted 3rd September 2020. So far it has been working but there's more surgery to come to help get him get back to a bit of normality. Due to all this he hasn't been able to attend school the last 2 years but hopefully soon we can start to get him back to school slowly.
No matter what he goes through he is always smiling and fights everything that's thrown at him. He amazes me every day and I couldn't be prouder of my little champion.